Dancing in the Rain

By on

One of my all time favorite quotes, the one that helped me through countless days like the one I’m about to describe for you sits in a prominent place in our home.  I put it there for a reason.  At least 500 times a day I walk past it and have the constant reminder that I am not in control over much of what happens in this life.  However, I am able to choose how I respond. And that is only by the grace of God.  I most certainly am not able to do any of it in my own power!

Around here we have lots of stormy weather.  I think it all started when Josiah was just about 5 years old.  Seemingly out of the blue, our sweet little guy decided to crank up the noise.  He went from cuddly, loving and curious to becoming explosive almost overnight. Looking back though, those were just heavy rain showers.  As he’s gotten older we’ve endured gale force winds and frequent flash flooding much more often than I’d care to admit.

There were no warnings, no Space City Weather guys preparing us for the impending doom.  It was just us, fumbling our way through with a house full of kids, trying to figure it all out.  Most of the time it was not pretty. Read more…

Today’s Episode – WHAT Were We Thinking?

By on

I enthusiastically mentioned to Rick this morning that a visit to the Houston Museum of Fine Arts might be a great thing to do with Josiah today.  Since Josiah hasn’t been attending many activities with our local Down syndrome group or with any of the other amazing disability groups in our area I suggested we make a plan to do a new and exciting adventure each weekend.  Gradually exposing Josiah to different environments will open up his world a bit more and get him (and us) out of the house.

He recently spent a week on vacation in San Antonio with the Josiah Whisperer.  Just the two of them.  They explored every mission, restaurant and art show within a 20 mile radius, not to mention a trip to the Japanese Tea Garden and a hike (up hill at times) through the Natural Bridge Caverns.

The Whisperer blew up our phone with pictures of Josiah staring intently at art pieces and smiling at sculptures, meandering through art installations as if an art connoisseur.

So, surely a trip to our local Art Museum would be right up his ally.   I was actually quite proud of myself for even thinking of such a great idea.  Read more…

By on

ETB 43:  If you have a child with a disability who likes to disrobe at night, I have just the thing for you!  For years we would wake in the wee hours of the morning to find our son undressed and sometimes enjoying finger paining fun with the contents of his full pull up!

When we discovered THIS product, it was a game changer!  I have 8 of these in larger sizes looking for a good home.  Reach out to me if they would make a difference in your life too and they are yours!

Little Keeper Sleeper
https://littlekeepersleeper.com/

Connect with Sandy
IG: https://www.instagram.com/sandydeppisch
Embrace the Blessing Facebook Group: http://bit.ly/ETB4ME
Website: http://www.embracetheblessing.com/

By on

ETB 38: In this episode I share a few stories about Josiah from the past few years when he was walking through a very long, very difficult season.  With so many challenges including aggression, destruction and self-injurious behaviors it was easy at times to lose sight of hope.

As a mom desperately trying to figure out how to best help my child,  it was heartbreaking to watch him struggle so much.  There is nothing like watching someone you love suffer and feel powerless to alleviate it.  Even after all the interventions, it was discouraging to see little to no improvement.

But I’m here to tell you, things drastically improved.  Despite the daunting forecast from a psychiatrist who told us Josiah would spend the rest of his life in a long-term psychiatric facility because he was too combative and self-injurious to live at home,  Josiah has become a different person.  He has made remarkable progress and continues to amaze me with his growth and abilities.

Don’t give up on your kids!  If you are in a difficult season and can’t imagine how things could ever get better, hang in there!  Pray without ceasing, reach out to others, seek support from those who has been where you are,  get respite if you need it but don’t ever give up hope!

Respite Care:
https://www.navigatelifetexas.org/en/family-support/respite-care-for-children-with-disabilities

Support Groups for Parents of Children with Special Needs:
https://blog.bayada.com/be-healthy/eight-support-groups-for-parents-raising-children-with-special-needs

GHFEDS – Galveston Houston Families Exploring Down Syndrome
http://ghfeds.org/

Connect with Sandy
IG: https://www.instagram.com/sandydeppisch
Embrace the Blessing Facebook Group: http://bit.ly/ETB4ME
Website: http://www.embracetheblessing.com/

By on

ETB 26:  In this episode I talk with Rick Deppisch. the first dad to be featured on the podcast who also just happens to be my husband and the father of our 5 children.  Rick shares his perspective on the challenges our family has endured and overcome over the years as we’ve navigated life with Josiah, our 20 year old son who has Down syndrome and non-verbal Autism.

Rick believes faith is what sustained him through the darkest days when Josiah, only 8 years old at the time, spent 10 months living away from home in a residential Behavior Treatment and Training Center.  He advocates the need for community and encourages parents who have a child with a disability to reach out to others to find a group of people to plug into for encouragement, resources and support.

Acknowledging that men handle their emotional responses differently than women and often times struggle to support other men who may be going through difficult times, Rick feels there should be more opportunities for dads to gather to be heard, strengthened and encouraged.

He also believes that if someone has helped you in your struggles, it’s your responsibility to reach back to offer a helping hand to others in need.

Meyer Center for Developmental Pediatrics
https://www.texaschildrens.org/location/meyer-center-developmental-pediatrics

Dr. Kathryn Ostermaier
https://www.texaschildrens.org/find-a-doctor/kathryn-katy-klish-ostermaier-md

Sleep Safe Bed
https://sleepsafebed.com/products/bed-models/

Connect with Rick
rdeppisch@gmail.com

Connect with Sandy
IG: https://www.instagram.com/sandydeppisch
Embrace the Blessing Facebook Group: http://bit.ly/ETB4ME
Website: http://www.embracetheblessing.com/