Dancing in the Rain

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One of my all time favorite quotes, the one that helped me through countless days like the one I’m about to describe for you sits in a prominent place in our home.  I put it there for a reason.  At least 500 times a day I walk past it and have the constant reminder that I am not in control over much of what happens in this life.  However, I am able to choose how I respond. And that is only by the grace of God.  I most certainly am not able to do any of it in my own power!

Around here we have lots of stormy weather.  I think it all started when Josiah was just about 5 years old.  Seemingly out of the blue, our sweet little guy decided to crank up the noise.  He went from cuddly, loving and curious to becoming explosive almost overnight. Looking back though, those were just heavy rain showers.  As he’s gotten older we’ve endured gale force winds and frequent flash flooding much more often than I’d care to admit.

There were no warnings, no Space City Weather guys preparing us for the impending doom.  It was just us, fumbling our way through with a house full of kids, trying to figure it all out.  Most of the time it was not pretty. Read more…

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ETB 32:  In this episode I share a story about a time when Josiah at 9 years old, left our home unescorted and none of us were aware that he was even gone.   Sadly, this was not the first time it happened and it most definitely was not the last.  We had some pretty frightening experiences with Josiah eloping.   Despite our best efforts to keep him safely INSIDE our home, he was clever and oh so fast at figuring out how to slip away unattended.  He had no sense of danger or the ability to protect himself.

Fortunately, we either found him pretty quickly each time or he was returned to us by a kind stranger.   I’m so grateful Josiah’s eloping days are over.  It was a terrifying time for us.

Statistics suggest nearly half of children with autism wander or bolt from safe places.  If you have a child who wanders, my heart goes out to you.  Elopement is a very difficult behavior to work through.

Here are some resources and products that may help:

What to Do When Your Child Elopes
https://www.marcus.org/autism-resources/autism-tips-and-resources/what-to-do-when-your-child-elopes

Wandering Off (Elopement) Autism Tool Kit
https://pediatrust.com/Autism-Wandering-Off-Elopement

The Autism Project – Elopement Prevention Community
https://theautismproject.org/training-education/elopement-prevention/elopement-prevention-general-resources

AngelSense Tracking Device
https://www.angelsense.com/gps-for-autism-wandering/

Autism Elopement and Wandering Kit for Families
https://parentingchaos.com/autism-elopement-wandering-kit-for-families/

Pathfinders for Autism – Tracking Devices
https://pathfindersforautism.org/resources/safety/tracking-devices/

The Best Kids GPS Trackers and Wearables of 2022
https://www.safewise.com/resources/wearable-gps-tracking-devices-for-kids-guide/

Connect with Sandy:
IG: https://www.instagram.com/sandydeppisch
Embrace the Blessing Facebook Group: http://bit.ly/ETB4ME
Website: http://www.embracetheblessing.com/

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ETB 27:  In this episode I talk with Vivecca Hartman, mother of 2 and new grandmother, about life with her 24 year old son Christopher, born with a rare genetic mutation, Leber Congenital Amaurosis. Physically healthy in every other way, his vision and hearing was all that was affected at birth.  Very curious, physically fit and funny, Christopher likes to stay active and keep busy.  He communicates with tactile sign language.  As long as he feels safe, Christopher is a very happy person, very independent within his home.

Vivecca is cofounder of Touch Base: Center for the Deafblind, a nonprofit organization that benefits deafblind people after they graduate from school. Currently, Touch Base is located in Houston, Texas. It is a small organization with a board consisting of parents of deafblind children, experienced staff from the Texas School for the Blind and Visually Impaired, and other dedicated professionals.  The purpose of Touch Base is to provide deafblind men and women with a day habilitation facility where they can participate in organized, meaningful, and purposeful activities.

Vivecca is also a long standing board member for the Lighthouse for the Blind, having served 10+ years.  The Lighthouse of Houston serves 5,000 individuals annually through health and community programs, independent living centers and assisted living facilities.  Of those they employ, nearly 40% are blind or visually impaired. Employees are trained to work in their service or products division.  Their programs and services provide individuals with the ability to live independently and to reach their full emotional, social and educational potential.

Deaf-Blind with Multiple Disabilities (DMBD) Medicaid Waiver
https://www.hhs.texas.gov/providers/long-term-care-providers/deaf-blind-multiple-disabilities-dbmd

Deaf-Blind Multihandicapped Association of Texas (DBMAT)   
https://dbmat-tx.org/

Community Living Assistance and Support Services (CLASS)
https://www.hhs.texas.gov/providers/long-term-care-providers/community-living-assistance-support-services-class.

Texas Medicaid Waiver Programs for Children with Disabilities
https://www.navigatelifetexas.org/en/insurance-financial-help/texas-medicaid-waiver-programs-for-children-with-disabilities
Phone Number: 1-877-438-5658 

Lighthouse for the Blind
https://www.houstonlighthouse.org/

PPCD
https://www.navigatelifetexas.org/en/education-schools/what-is-ppcd

Touch Base Center for the Deafblind
https://www.touchbasecenter.org/about-touch-base

Touch Base: Center for the Deafblind Facebook Page
https://www.facebook.com/TouchBaseCenter

Connect with Vivecca Hartman
hartmanfam28@sbcglobal.net
1-713- 231-7508

Connect with Sandy
IG: https://www.instagram.com/sandydeppisch
Embrace the Blessing Facebook Group: http://bit.ly/ETB4ME
Website: http://www.embracetheblessing.com/

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ETB 26:  In this episode I talk with Rick Deppisch. the first dad to be featured on the podcast who also just happens to be my husband and the father of our 5 children.  Rick shares his perspective on the challenges our family has endured and overcome over the years as we’ve navigated life with Josiah, our 20 year old son who has Down syndrome and non-verbal Autism.

Rick believes faith is what sustained him through the darkest days when Josiah, only 8 years old at the time, spent 10 months living away from home in a residential Behavior Treatment and Training Center.  He advocates the need for community and encourages parents who have a child with a disability to reach out to others to find a group of people to plug into for encouragement, resources and support.

Acknowledging that men handle their emotional responses differently than women and often times struggle to support other men who may be going through difficult times, Rick feels there should be more opportunities for dads to gather to be heard, strengthened and encouraged.

He also believes that if someone has helped you in your struggles, it’s your responsibility to reach back to offer a helping hand to others in need.

Meyer Center for Developmental Pediatrics
https://www.texaschildrens.org/location/meyer-center-developmental-pediatrics

Dr. Kathryn Ostermaier
https://www.texaschildrens.org/find-a-doctor/kathryn-katy-klish-ostermaier-md

Sleep Safe Bed
https://sleepsafebed.com/products/bed-models/

Connect with Rick
rdeppisch@gmail.com

Connect with Sandy
IG: https://www.instagram.com/sandydeppisch
Embrace the Blessing Facebook Group: http://bit.ly/ETB4ME
Website: http://www.embracetheblessing.com/

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In this 2nd half of a 2 part episode I continue to talk with Ashley Bennett, boy mom of 3 and amazing Special Education teacher.  Her oldest son, Ashton was born when Ashley was  just 19 years old.  He  was diagnosed with Autism at age 1.  As a teen mom,  taking college classes in addition to working, Ashley had to come to terms with the unexpected discovery that her baby boy had developmental delays.  When Autism was mentioned, Ashley didn’t even fully comprehend what that meant for Ashton or for the future.

Ashley talks about the early years when much of her time and attention was devoted to educating herself and helping her young son get all the interventions and therapies he needed.  She believes her son’s diagnosis prompted a calling for her life’s work.  Ashley persevered through the challenges to achieve not 1, but 3 college degrees.   She currently motivates and inspires her High School Life Skills students every day, making a positive difference for them and for their families.

If you haven’t heard the first half of Ashley’s interview,  be sure to listen to it in its entirety.  You won’t want to miss any of this amazing episode.

Center for Autism and Developmental Disabilities
https://www.uhcl.edu/autism-center/

Early Childhood Intervention Services
https://www.hhs.texas.gov/services/disability/early-childhood-intervention-services

Connect with Sandy:
IG: https://www.instagram.com/sandydeppisch
Embrace the Blessing Facebook Group: http://bit.ly/ETB4ME
Website: http://www.embracetheblessing.com/